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Newsletter Archive|January 2004
------------===EYESONTHEPRIZE.ORG NEWSLETTER===-------------
Volume IV, Number 11, January 2004
http://www.eyesontheprize.org
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--==MISSION STATEMENT
The mission of EyesOnThePrize.org, a nonprofit corporation,
is to provide information and emotional support from the
survivors' perspective to women with gynecologic cancers,
their families and friends, and healthcare providers. Katie Allen, Editor <editor@eyesontheprize.org> --==SHARE THIS NEWSLETTER WITH A FRIEND
Subscription information at the end of this email -------------============CONTENTS============-------------- ** Welcome ** January is National Cervical Cancer Awareness Month in the U.S.A ** What's New on the Web Site: * Research Update: HPV Testing and Pap Smears * New Stories * New Resource * New FAQ * Ask the Pros on Cervical Cancer ** How You Can Help --------------============ooOOOoo============-------------- --==WELCOME Welcome to this issue of the EyesOnThePrize.Org newsletter.
Our newsletter is designed to bring gynecologic cancer news
to you, alert you to what is new on the site, and to let you
know what's going on 'behind the scenes' at EOTP.
--==JANUARY IS NATIONAL CERVICAL CANCER AWARENESS MONTH IN THE U.S.A. EOTP wants to make sure you are informed about cervical cancer risk, detection, and treatment. Visit our Focus on Cervical Cancer page at: http://eyesontheprize.org/advocacy/focus_cca.html From Mary Beth, EOTP.org Board Member and PR team member: January is Cervical Cancer Awareness Month in the US! If you're a gyn cancer survivor and would like to "get the word out" please send this letter (adapted to your own situation, of course) to your local newspaper. Or create your own letter and send it! ------------------------------------------------------------ January 2004 Letter to the Editor
(newspaper’s name)
(newspaper’s address)
Last year, more than 80,000 women in the United States received an unexpected diagnosis: cancer of a reproductive organ. This means that on average, one woman in the United States is diagnosed with gynecologic cancer every seven minutes – that's more than 200 women in the United States diagnosed each and every day. While these types of cancer – including cervical, uterine and ovarian – are rarely discussed, they affect more women than lung cancer and colon cancer. January is Cervical Cancer Awareness Month. Far too many women seem to believe that cervical cancer is no longer a common nor deadly disease. Unfortunately, an estimated 10,520 women in the United States will be diagnosed with – and 3,900 will die from – cervical cancer. As a gynecologic cancer survivor, I encourage all women to take care of themselves by: * Scheduling routine medical exams, including an annual pap test * Visiting doctors whenever unusual symptoms develop * Seeking the support of other cancer survivors if necessary When I was diagnosed with cancer, I found much-needed support through EyesOnThePrize.org, an international web community that provides information and emotional support from the survivor's perspective. The www.eyesontheprize.org web site's resources include an email discussion list, frequently asked questions, survivor's stories, a chance to “Ask The Pros," links to resources, and an "In Your Community” database that directs women to support groups in their hometowns. Sincerely, (your name) (your address) (your phone number) ----------------------------------------------------------- If your local newspaper publishes your letter, please let us know: pr@eyesontheprize.org --------------============ooOOOoo============-------------- We invite Letters to the Editor: editor@eyesontheprize.org --------------============ooOOOoo============-------------- --==HONOR SOMEONE SPECIAL WITH A GIFT TO EOTP.org Consider honoring a special anniversary or a loved one "finishing the race" with a donation to EyesOnThePrize.Org: http://www.eyesontheprize.org/donate/index.html Your gift -- tax-deductible in the USA -- helps spread the word about EOTP.org to women in need. And EOTP now accepts donations via credit cards through PayPal! --o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--
WHAT'S NEW ON THE WEB SITE
http://www.eyesontheprize.org
--==RESEARCH UPDATE From Judy Knapp, Ph.D., MSW, EyesOnThePrize.Org Board Vice President This month, Judy reports on a review of several large screening studies on the relationship between certain strains of human papillomavirus (HPV) and cervical cancer. Analysis of data from these studies indicates that DNA testing for presence and type of HPV is a better indicator of pre-malignant changes than any form of Pap smear now available. The authors conclude that using HPV testing in addition to routine Pap smear to diagnose such conditions is an effective way to manage them. Visit: http://eyesontheprize.org/links/researchupdate.html#jan2004 to read more.
--==NEW STORIES From Katie, Our Stories Editor Two new cervical cancer stories have been added to Our Stories: Stehanie G's diagnosis came as a result of a c-section. Her story is an important lesson in the importance of playing an active role in your health care: http://eyesontheprize.org/stories/stephanie.html Vee J's story is filled with good, firsthand tips for getting through a hysterectomy. Read it at: http://eyesontheprize.org/stories/vee.html Have a story of your own to tell? Send it to: Katie, Our Stories editor at: stories@eyesontheprize.org --==NEW RESOURCES From Georgia P. Resources & Links Editor links@eyesontheprize.org NEW LINK During chemotherapy treatment, we have many questions and concerns; the Chemocare web site offers an excellent overview to help with those. Check out the sections related to: Chemotherapy drugs (an extensive listing), Managing Side Effects (something everyone can use during treatment), and Nutrition information. Scott Hamilton developed this site in conjunction with the Cleveland Clinic Cancer Center, based on his own experiences during cancer treatment. There are also sections on Survivor experiences, and Complementary therapies. To learn more, visit EOTP's Resources section at: http://www.eyesontheprize.org/links/txdx.html#chemo --o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o-- PURCHASE BOOKS AT AMAZON.COM AND HELP EOTP.ORG Don't forget that any book purchase made at Amazon.com through our EOTP link, will earn EOTP.org a commission that we turn back into support for women with gynecologic cancer. --o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o-- --==NEW FAQ From Karen P., FAQ Editor faq@eyesontheprize.org Chemo experiences vary widely, depending on the drug(s) and dosage being used and the individual's own particular response. Several women give an overview of their chemotherapy experiences, answering the question: "What should I expect during my chemotherapy experience? Will chemo be really horrible?" http://www.eyesontheprize.org/FAQ/tx/chemo.html Can you help? We are still looking for "general" accounts of the chemo experience, especially for drugs OTHER THAN Taxol, cisplatin, and carboplatin. In addition, our next topic deals with "maintaining daily activities" during chemo, and we are looking for information from women from all walks of life - career women, stay-at-home moms, retired women etc. - who have had various chemo regimes for gyn cancer. If you would like to donate some written material to EyesOnThePrize.org on this topic, please send your submission to: faq@eyesontheprize.org?subject=Chemo_FAQs --==ASK THE PROS - CERVICAL CANCER QUESTIONS In honor of Cervical Cancer Awareness Month, we are featuring a collection of all our Ask the Pros questions about cervical cancer. Check out them all out from our Focus on Cervical Cancer page: http://www.eyesontheprize.org/focus_cca.html#atp Are they looking for a vaccine for HPV that will also cure people already infected, or will it be only to prevent future spread? Thomas J. Herzog, MD How long do I have to wait before resuming my exercise routine after a cone biopsy? Judy Knapp, PhD, MSW Can I transmit HPV to my child or coworkers through nonsexual casual contact? Vicente Colon, MD What are the risks of a Loop Electrosurgical Excision Procedure during pregnancy? John Comerci, MD What is the difference between cervical carcinoma in situ and CIN3 -- is one cancer and one precancer? Fredric V. Price, MD What are the risks for pregnant women who might have cervical dyplasia? John Comerci, MD Do all infections with HPV carry the same risk for developing cervical cancer? Howard Marc Saul, D.O. What is the difference between squamous cell carcinoma and adenocarcinoma of the cervix in terms of survival rates, treatment and growth of tumour times? Fredric V. Price, MD What is the difference between a Stage 1a and Stage 1b cervical cancer? Thomas J. Herzog, MD How long does it take for moderate to severe dysplasia to
become cancerous? Howard Marc Saul, D.O.
--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o-- HOW YOU CAN HELP --==MAKE SOMEONE'S DAY WITH FLOWERS! Irises, and all kind of flowers and gift baskets from Proflowers.com earn EOTP.org 15%. Direct from the growers for freshness and low prices. http://www.eyesontheprize.org/store/flowers.html --==SHOP FOR A GOOD CAUSE! If you shop online, you can give EOTP much-needed support at the same time! iGive.com is an online mall of over 400 merchants who have pledged a percentage of their sales to charitable causes. Shop name-brands like Avon, GNC, LLBean, Hallmark, Eddie Bauer, JC Penney, OfficeDepot, Gap, Old Navy, Toys R Us, Dell Computers, PC/Macconnection and many, many more. Following the iGive.com link below automatically sets your cause to EyesOnThePrize.org -- all you have to do is sign in with your email address and start shopping! http://www.iGive.com/html/refer.cfm?causeid=18866 Or purchase mugs, tee shirts, sweat shirts and hats with EOTP's logo at our CafePress store. It all starts here: http://www.eyesontheprize.org/store/ --o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o-- TO SUB OR UNSUB FROM THIS NEWSLETTER To subscribe, send an e-mail message to
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